So last Friday, we all know I went and saw my doctor. She explained that pathology was still not in and she was hoping it would be by next week.
Well, I've been going back and forth with them all week trying to figure out if I had actually signed papers for pathology while I was in the hospital. I explained that I had signed many papers in there but I did not remember signing specifically pathology papers that day. Well, I could obviously tell that they were having problems and that there must have been a mix up.
Sure enough, my doctor called me yesterday and confirmed that because they had no record of anything being signed, he has not been sent anywhere and pathology had not been done. Due to having delivered him over 3 weeks ago and him already being passed 2 weeks before that, she explained that now it was probably too late and we probably will not be able to find out much.
I am so extremely mad, confused and sad. First of all, I can not explain how abundantly clear it was in that hospital room that I wanted pathology done. The doctor that helped deliver the placenta had even told the nurses to send everything, including his umbilical cord to pathology. She said we should have answers about his umbilical cord and now we have nothing..
I decided to call around and actually spoke with a head pathologist at Loma Linda and told him my story, how far along I was, how big the baby was etc. He then said that it really was too late for pathology now and that the only thing that could be done was possibly an autopsy. Well, honestly, the main reason I wanted this done was to know if this could happen again. The way to see that is to have chromosomal testing done. He said that it was absolutely too late for that. At this point we could MAYBE find out why he died but if there was a reason, like for example, his heart didn't form properly or whatever, then that would be a fluke but he wouldn't be able to confirm whether that would happen again or not.
So, after hearing that, I had to decide if I still wanted to at least do an autopsy. Now, if I sign this paper for this to be done it explains that he will then be shipped out to Mayo Clinic in Minnesota and after everything was done they would then mass cremate him with many other "fetuses" and he would then be mass buried in Minnesota. Well, after reading that, it totally freaked me out. I had already been having such a hard time. I honestly was so freaked out about where he was and what they were doing with him.
I understand that his body is not him and he is in heaven. I understand his body is not what matters anymore. But to me, it was all I had of him. I didn't want them to throw him away which is what I pictured them doing. I knew that even if I died and I was in heaven my mom would not allow them to do that to my body. She would take care of me/my body. That's how I feel about my son. I don't want them to "mass cremate" him and throw him in some burial in Minnesota. He was mine and he belongs with me. So, after a lot of discussion with my family we decided that for my peace of mind we could not sign that paper and send him to Minnesota, and that testing was off the table now.
I will tell you that I am extremely upset with the hospital. Because of this mistake on their part, I am now having to deal with this 3 weeks later. I now have to call around to funeral homes and decide what I want to do. I will be taking this up with the hospital and they will be hearing what I have to say. This mistake is completely inexcusable and irreversible.
At this point though, I need to decide what I want to do. I can't believe that now I have to decide this. It's something I never want to think about for any of my family members, let alone my son. I have to decide if I want to now bury him or have him cremated. I have never liked the idea of cremation. I have some issues with it, as I'm sure others do and I just wasn't sure if it was something I wanted to go with. I also know that burial is extremely expensive and is probably not going to be an option for me. I also don't know where. I don't know if I'm going to live here forever and I can't bear the thought of just leaving one day when he is here. So, I called around about cremation. Cremation is still quite expensive. I'm trying to find some cheaper places. Which, I've been told so many different prices. I've been given $600, $350, and $250. So obviously $250 is the best I've been given so that's probably the price that I'll be paying.
I'm just upset about the whole ordeal and mad that I have to make so many decisions so late in the game. It's frustrating that they made such a bad mistake that could possibly affect future pregnancies down the road.
BUT, I'm definitely seeing the silver lining. This has been something I have been struggling with for so long and now I have a chance to have him close to me for always. Maybe there was no reason at all to have pathology done and God knew this was the better option for me.
We will see how things work out. I'm waiting to receive a call from my doctor to find out exactly where my son is and what I need to do in order to have a funeral home go pick him up. From what I understand, I will receive a very small urn of his ashes. I can then decide what I want to do...spread them, put them in a locket, etc.
Hopefully we can get some things figured out next week as today was extremely difficult to get answers.